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Our social media campaign #myEDSdiagnosis invites people to share the length of time it took to reach a diagnosis relating to Ehlers-Danlos syndromes. If you would like to share your picture, tag a photo of yourself with the length of time to diagnosis on Instagram and tag it with #myEDSdiagnosis. We will be continuing to share images here showing how diverse people who identify with EDS can be and how the illness affects each of them in different ways. 

Thank you to all those who have joined our social community and shared their photos with us this year. 

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The documentary movie ‘The Dark Horse’ is searching for EDS sufferers to have the chance to feature in the film! ⠀⠀ Fellow EDS sufferer and director @ashleighharleyofficial is holding an online virtual concert to take place on the 7th Jun
The documentary movie ‘The Dark Horse’ is searching for EDS sufferers to have the chance to feature in the film! ⠀⠀ Fellow EDS sufferer and director @ashleighharleyofficial is holding an online virtual concert to take place on the 7th June to bring people from all corners of world together via Zoom, so we can remind each other that though we are living through unprecedented pandemic caused by Covid-19, we are never alone. ⠀⠀ So come along and be in the film, sing the song Worlds Apart or just come along to make new friends. ⠀⠀ On the 7th June 2020, let’s sing together whilst we all stay ‘Worlds Apart’. ⠀⠀ To get involved, either sign up by email or website below: 📧 ashleighharley1@gmail.com 🔍 http://www.ashleighharley.com/worlds-apart/
Silence is compliance. We hear you. We stand with you. Black lives matter 🖤
Silence is compliance. We hear you. We stand with you. Black lives matter 🖤
🔴 #REDS4VEDS DAY 2020🔴 ⠀⠀ Today, we show our support by wearing red to help spread awareness of Vascular Ehlers-Danlos syndrome (vEDS). Get involved by doing the same and share it on social media to raise awareness of this rare and life-threatening
🔴 #REDS4VEDS DAY 2020🔴 ⠀⠀ Today, we show our support by wearing red to help spread awareness of Vascular Ehlers-Danlos syndrome (vEDS). Get involved by doing the same and share it on social media to raise awareness of this rare and life-threatening type of EDS! ⠀⠀ For more info, visit www.reds4veds.org
🚲 PRUDENTIAL RIDE LONDON 2020🚲 ⠀⠀ Mind Body EDS have been lucky enough to have been allocated 2 charity ballot places for this years Prudential Ride London race on 16th August 2020! ⠀⠀ If you’d like to take on a challenge whilst raising money
🚲 PRUDENTIAL RIDE LONDON 2020🚲 ⠀⠀ Mind Body EDS have been lucky enough to have been allocated 2 charity ballot places for this years Prudential Ride London race on 16th August 2020! ⠀⠀ If you’d like to take on a challenge whilst raising money for charity, please register your interest by emailing ➡️ info@mindbodyeds.org.uk ⠀⠀ ⚠️ REGISTRATION CLOSES 30TH MAY
MAY 2020🎗EHLERS-DANLOS SYNDROMES and HYPERMOBILITY SPECTRUM DISORDER AWARENESS MONTH🎗 ⠀⠀ On average, it takes over 10 years for a diagnosis of EDS or HSD. To help raise awareness this month, we want you to get involved by participating in our campa
MAY 2020🎗EHLERS-DANLOS SYNDROMES and HYPERMOBILITY SPECTRUM DISORDER AWARENESS MONTH🎗 ⠀⠀ On average, it takes over 10 years for a diagnosis of EDS or HSD. To help raise awareness this month, we want you to get involved by participating in our campaign #10forEDS ➡️ ⠀⠀ 1️⃣ Do 10 - challenge yourself to an activity or hobby e.g. meditating for 10 mins, doing 10 press-ups, cycling/running/walking 10km, juggling for 10 seconds, baking 10 cupcakes, painting/sketching for 10 mins, reading 10 pages of your book, even 10 mins of cleaning - get creative! 2️⃣ Donate £10 - link in bio 3️⃣ Nominate 10 - share on social media your #10forEDS with 🖐🏼🖐🏼 up, choose 10 friends to challenge themselves and tag @mindbodyeds ⠀⠀ By participating in the #10forEDS campaign, not only will you have fun, but you will make a positive impression on many EDS sufferers lives by helping spread awareness and fundraise for @mindbodyeds charity. Thank you for your generosity!
🎗We’re inviting you, your family and friends to take part in The 2.6 Challenge from Sunday 26 April to help save the UK’s charities. The COVID-19 pandemic has caused a devastating effect on charities and we’re asking for your help! ⠀⠀ 👏🏼The 2.6 Challenge will launch on Sunday 26th April (what should have been the date for 40th London Marathon, the world’s largest one-day annual fundraising event). We’re asking you to take part in an activity of your choice based around the numbers 2.6 or 26 and fundraise and donate to support @mindbodyeds ⠀⠀ 🏃‍♀️ People of all ages are taking part from walking, running or cycling 2.6 miles, juggling for 2.6 minutes, to holding online workouts with 26 friends. The ideas are limitless! The only requirement is that you must follow Government guidelines on exercise and social distancing. ⠀⠀ 🌟There are just 5 steps to take: 1️⃣Dream your 2.6 challenge 2️⃣Click the link above to donate £26 (or whatever you can afford) to @mindbodyeds or set up a fundraising page 3️⃣Ask all your friends and family to sponsor you and challenge them to do their own 2.6 Challenge 4️⃣Complete your challenge 5️⃣Share a photo or video of your challenge on social media and tag @mindbodyeds and #twopointsixchallenge ⠀⠀ 🙌🏼 We hope you’ll join the nation in The 2.6 Challenge to support @mindbodyeds and help save the UK’s charities! @londonmarathon
Thank you @thelaughingstoma for this week’s #myedsdiagnosis feature story. Together, we can help make our invisible, visible. Spread the hope, the love, and the awareness #zebrawarrior #ehlersdanlossyndrome #chronicillness#myedsdiagnosis #eds #
Thank you @thelaughingstoma for this week’s #myedsdiagnosis feature story. Together, we can help make our invisible, visible. Spread the hope, the love, and the awareness #zebrawarrior #ehlersdanlossyndrome #chronicillness#myedsdiagnosis #eds #ehlersdanlossyndrome #hypermobility #hsd #ceds #veds #heds #edsawareness #zebrastrong #zebrawarrior • • • • • • 3 years. This is how long I spent struggling with debilitating health issues before I was finally diagnosed with Ehlers-Danlos Syndrome. My health has never been great my whole life (after all, I’ve had a total of 11 surgeries!), but it wasn’t until 2014 that things started to worsen. I had many frustrating doctors' appointments, tests, and hospital stays that didn’t yield any answers. One doctor even told me that I was wasting his time, while another said that because I majored in psychology, I “should know that some things just can’t be explained.” ⠀⠀⠀⠀⠀⠀⠀⠀⠀ It wasn’t until my lower half started to fall apart last year in the form of rectal and pelvic organ prolapses (at the mere age of 23!) that my doctors realized something was indeed going on. Although I had recently been diagnosed with endometriosis, it couldn’t explain everything; after all, no nulliparous woman my age gets prolapses without the presence of some other underlying condition. That was when my doctors realized I had hypermobile EDS — a genetic connective tissue disorder caused by defective collagen that is primarily characterized by joint hypermobility, skin elasticity, and tissue fragility. Because collagen is found in nearly all body organs, EDS often causes a wide range of problems, and for me has affected my GI system the most, and is what ultimately led to my ileostomy. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ This post was inspired by the lovely @mind_body_eds, who is encouraging others to share how long it took to get their EDS diagnosis. Although it’s EDS awareness month, it’s important to mention that although EDS has greatly affected my life, it does not define me. I have hopes and dreams. I am in love. I’m always smiling and laughing. I quote Matilda at least twice a day. And I believe that dogs are the greatest beings on Earth. I am more than my diagnosis.
💙R A N D O M A C T S O F K I N D N E S S D A Y💙 17th February 2020 • Several studies have shown that kindness is indeed contagious. When a person does an act of kindness for another person, it makes the person receiving it more likely to d
💙R A N D O M A C T S O F K I N D N E S S D A Y💙 17th February 2020 • Several studies have shown that kindness is indeed contagious. When a person does an act of kindness for another person, it makes the person receiving it more likely to do an act of kindness for someone else. This can unfold exponentially – like a ripple on a pond, so don’t think your act of kindness doesn’t matter because it does • Here are a few ideas of random acts of kindness you can do today: 💙 Smile or compliment a stranger 💙 Send a text of encouragement to a friend 💙 Find a volunteer opportunity 💙 Buy lunch for a homeless person 💙 Donate blood 💙 Leave a kind comment on social media 💙 Donate to a charity or fundraising campaign 💙 Treat someone to coffee today 💙 Put loose change in a tip jar or charity collection 💙 Send a letter to a friend you haven’t spoken to for a while • What is your random act of kindness today? Comment below 👇🏼
🌟MIND BODY EDS CHARITY QUIZ NIGHT🌟 • We’d like to say a BIG thank you to all those who came and supported @mindbodyeds Charity Quiz Night! An evening full of brain-boggling questions, laughter, delicious Sri Lankan Curry, and an incredib
🌟MIND BODY EDS CHARITY QUIZ NIGHT🌟 • We’d like to say a BIG thank you to all those who came and supported @mindbodyeds Charity Quiz Night! An evening full of brain-boggling questions, laughter, delicious Sri Lankan Curry, and an incredible selection of Raffle and Silent Auction Prizes! The charity event was a HUGE success and raised the equivalent of funding at least 10 individual private consultations for a diagnosis of EDS 🙌🏼 Thank you for your support and donations towards helping our charity make an impressionable difference to the lives who suffer from Ehlers-Danlos syndromes • We are most grateful to the following sponsors who kindly donated prizes: @chelseafc @thejockeyclub @steamdreamsrailco @silentpoolgin @lauramercier @jessicakohnmakeup @jomalonelondon @saskiaamor @nandosuk @gigglingsquid @sohowhiskyclub @knightsofmiddleengland @frankgreen_official @thefoodmedic @davidlloydfarnham @oliverbonas @starbucksuk @ebbflowyoga @sweatybetty @b_ndstore @livias @emshelx @thesculpturepark @colourenergyworks @aromatherapy.works @orvis_farnham @waitroseandpartners The Haslemere Clinic
Thank you @uhmandi for this week’s #myedsdiagnosis feature story. Together, we can help make our invisible, visible. Spread the hope, the love, and the awareness #zebrawarrior #ehlersdanlossyndrome #chronicillness • • • • &
Thank you @uhmandi for this week’s #myedsdiagnosis feature story. Together, we can help make our invisible, visible. Spread the hope, the love, and the awareness #zebrawarrior #ehlersdanlossyndrome #chronicillness • • • • • • 18 years and 11 months. that’s how long it took me to get my EDS diagnosis since my symptoms began. no one should have to wait this long for a diagnosis of ANY KIND, especially one where early diagnosis means less future damage and much better management throughout life. my EDS symptoms began at birth, and continued from there, becoming more and more progressive/degenerative. EDS needs more awareness because we should have the right to a quick, accurate diagnosis so we can start with preventative care - rather than damage control years later after we’ve destroyed our fragile bodies while being none the wiser. Educate yourself, educate your friends, your family, anyone who will listen. you don’t know who’s life you could be saving in doing so. thank you so much to @mind_body_eds for starting this project, it’s amazing to show people who otherwise would have no idea, the struggle there is in finding an accurate diagnosis and answer to “what’s wrong” , especially in the rare disease community. 🦓 #EDS #ehlersdanlossyndrome #ehlersdanlossyndromeawarenessmonth #edsawareness #myedsdiagnosis #zebrastrong #careforrare #myedsdiagnosis #eds #ehlersdanlossyndrome #hypermobility #hsd #ceds #veds #heds #edsawareness #zebrastrong #zebrawarrior #chronicillness #spoonie #inspiration #mindbodyeds #agatewayofhope #charity #nonprofit #support #awareness #advocate #donate
🎗T I N N I T U S A W A R E N E S S W E E K 🎗 • Tinnitus is the perception of noise or ringing in the ears. A common problem, tinnitus affects about 15 to 20 percent of people. Tinnitus isn't a condition itself — it's a symptom of an un
🎗T I N N I T U S A W A R E N E S S W E E K 🎗 • Tinnitus is the perception of noise or ringing in the ears. A common problem, tinnitus affects about 15 to 20 percent of people. Tinnitus isn't a condition itself — it's a symptom of an underlying condition, such as age-related hearing loss, ear injury, circulatory system disorder or connective tissue disorder • Many patients with Ehlers-Danlos syndromes suffer from tinnitus due to the instability of the bones in the middle ear which can lead to hearing loss. Tinnitus can also be a symptom of neurological manifestations (e.g. Chiari malformation, Craniocervical instability, intravascular blood flow issues, CSF pressure irregularities etc), vestibular issues, autonomic dysfunction and many more co-morbid conditions • To learn more about tinnitus, visit www.tinnitus.org #tinnitus #ehlersdanlossyndrome #eds #edsawareness #ceds #veds #keds #hsd #hypermobility #hypermobilityspectrumdisorders #chronicillness #chronicdisease #chronicpain #chronicfatigue #backpain #backpainawareness #backpainweek #invisibleillness #invisibledisability #disability #butyoudontlooksick #zebrastrong #spoonie #spoonielife #charity #nonprofit #support #donate #mindbodyeds #agatewayofhope
Thank you @lauren.vasko for this weeks #myedsdiagnosis feature story. Together we can help make our invisible, visible. Spread the hope, the love, and the awareness #zebrawarrior #ehlersdanlossyndrome #chronicillness • • • • &bull
Thank you @lauren.vasko for this weeks #myedsdiagnosis feature story. Together we can help make our invisible, visible. Spread the hope, the love, and the awareness #zebrawarrior #ehlersdanlossyndrome #chronicillness • • • • • • • • • • • • • • • 5 years of searching for an answer to all my symptoms. I was told to stop looking for an answer and to just deal with the symptoms. I was told it was all in my head. I was told that’s how everyone else is too. That was all wrong. In 2017, at the age of 18, I was diagnosed with Ehler’s Danlos Syndrome. I was being tested for POTS (Postural Orthostatic Tachycardia Syndrome), when the doctor said the cause of my POTS was EDS. I started crying. The nurse and doctor told me it would be ok, but I wasn’t crying because I was upset with the diagnosis. I was crying because I HAD a diagnosis. For years I had been looking for what was wrong with me, so when I had a name for my symptoms, I had an overwhelming amount of validation. I was happy that we ending the chapter of looking for a diagnosis and started the chapter of treating me. @mind_body_eds #myEDSdiagnosis #edsawarenessmonth #zebrastrong . . . . . #eds #zebrastrong #ehlersdanlossyndrome #chronicillness #pots #allergies #anaphylaxis #crps #chronicregionalpainsyndrome #chronicpain #chronicillnesswarrior #chronicillnessawareness #ibs #gerd #youtube #youtuber
🌟 S I L E N T A U C T I O N 🌟 ⠀⠀ We have a wonderful selection of Silent Auction Prizes being offered for the Charity Quiz Night on Saturday 8th February. We are welcoming bids from the public! So show your support by place a bid! ⠀⠀ If you&rsquo
🌟 S I L E N T A U C T I O N 🌟 ⠀⠀ We have a wonderful selection of Silent Auction Prizes being offered for the Charity Quiz Night on Saturday 8th February. We are welcoming bids from the public! So show your support by place a bid! ⠀⠀ If you’d like to place a bid, please email info@mindbodyeds.org.uk the following details: • Your name • Your chosen silent auction prize • Your bid amount (£) • Preferred payment (PayPal, bank transfer, cheque, cash) ⠀⠀ 🌟DEADLINE FOR BIDS TO BE EMAILED IS FRIDAY 7th FEBRUARY AT 00:00🌟
“You don’t have to think about the full staircase, just take the first step” • Martin Luther King Jr • Dr King taught us about courage, equality, truth, justice, compassion, and humility. This national holiday serves as an
“You don’t have to think about the full staircase, just take the first step” • Martin Luther King Jr • Dr King taught us about courage, equality, truth, justice, compassion, and humility. This national holiday serves as an important reminder of some of life’s important values. • To all of our followers dealing with a chronic illness, this quote rings true during overwhelming medical times and day to day struggles. Take it one step at a time. • ⠀⠀ #ehlersdanlossyndrome #eds #edsawareness #ceds #veds #keds #hsd #hypermobility #hypermobilityspectrumdisorders #chronicillness #chronicdisease #chronicpain #chronicfatigue #backpain #backpainawareness #backpainweek #invisibleillness #invisibledisability #disability #butyoudontlooksick #zebrastrong #spoonie #spoonielife #charity #nonprofit #support #donate #mindbodyeds #agatewayofhope
Thank you @chronicallykim for this week’s #myedsdiagnosis feature story. Together, we can help make our invisible, visible. Spread the hope, the love, and the awareness #zebrawarrior #ehlersdanlossyndrome #chronicillness • • • &
Thank you @chronicallykim for this week’s #myedsdiagnosis feature story. Together, we can help make our invisible, visible. Spread the hope, the love, and the awareness #zebrawarrior #ehlersdanlossyndrome #chronicillness • • • • • • May is EDS awareness month 🦓 and so I’m taking part in @mind_body_eds campaign to raise awareness. 13 is the number of years I was actively searching for a diagnosis. I was only 13 when I was admitted to hospital with crippling pain unable to walk.... I had numerous tests and my parents were eventually told it was “all in my head” they said I was feeling the pain but it wasn’t actually there. For the next 11 years, I was plagued by all manner of seemingly random illnesses and issues, until when I was 24 I fainted in work and that was it, my health spiraled more than I could ever imagine. Then at 26, my cardiologist told me he suspected EDS and referred me to a rheumatologist, I thank my lucky stars ⭐️ for him everyday that he was able to join the dots eventually! Remember if you can’t connect the issues think connective tissues. Receiving a diagnosis of EDS may be scary but putting a name to the illness is empowering 💪🏼 with knowledge comes power!!! I may have EDS 🦓 but EDS sure doesn’t have me ❌ 🦓early diagnosis is key to save lives and improve quality of life, 13 years is 13 years too long! 🦓 ✨ @watercolor_me_impressed #myedsdiagnosis #zebrastrong #edsawarenessmonth #fragilebutunbreakable #edsessentialsgiveaway #myedsdiagnosis #eds #ehlersdanlossyndrome #hypermobility #hsd #ceds #veds #heds #edsawareness #zebrastrong #zebrawarrior #chronicillness #spoonie #inspiration #mindbodyeds #agatewayofhope #charity #nonprofit #support #awareness #advocate #donate
Thank you @adiepohlman for this week’s #myedsdiagnosis feature story. We appreciate you being able to share your story to help raise awareness about EDS. Together, united, we can help make our invisible, visible. Spread the hope, the love, and
Thank you @adiepohlman for this week’s #myedsdiagnosis feature story. We appreciate you being able to share your story to help raise awareness about EDS. Together, united, we can help make our invisible, visible. Spread the hope, the love, and the awareness #zebrawarrior #ehlersdanlossyndrome #chronicillness #myedsdiagnosis #eds #ehlersdanlossyndrome #hypermobility #hsd #ceds #veds #heds #edsawareness #zebrastrong #zebrawarrior #chronicillness #spoonie #inspiration #mindbodyeds #agatewayofhope #charity #nonprofit #support #awareness #advocate #donate
📝EDS FACT📝 • Vascular Ehlers-Danlos syndrome is an inherited connective tissue disorder that is caused by defects in a protein called collagen. It is generally considered the most severe form of Ehlers-Danlos syndrome (EDS) • Common sympt
📝EDS FACT📝 • Vascular Ehlers-Danlos syndrome is an inherited connective tissue disorder that is caused by defects in a protein called collagen. It is generally considered the most severe form of Ehlers-Danlos syndrome (EDS) • Common symptoms include thin, translucent skin, easy bruising, characteristic facial appearance, and fragile arteries, muscles and internal organs • Treatment and management is focused on preventing serious complications and relieving signs and symptoms • Source: rarediseases.info.nih.gov • ⠀⠀ #ehlersdanlossyndrome #eds #edsawareness #ceds #veds #keds #hsd #hypermobility #hypermobilityspectrumdisorders #chronicillness #chronicdisease #chronicpain #chronicfatigue #backpain #backpainawareness #backpainweek #invisibleillness #invisibledisability #disability #butyoudontlooksick #zebrastrong #spoonie #spoonielife #charity #nonprofit #support #donate #mindbodyeds #agatewayofhope
Thank you @flyingthroughit for this week’s #myedsdiagnosis feature story. Your story is one we hear too often but together we'll raise awareness, achieve earlier diagnosis and support EDS patients manage symptoms. Spread the hope, the love, and
Thank you @flyingthroughit for this week’s #myedsdiagnosis feature story. Your story is one we hear too often but together we'll raise awareness, achieve earlier diagnosis and support EDS patients manage symptoms. Spread the hope, the love, and the awareness #zebrawarrior #ehlersdanlossyndrome #chronicillness #myedsdiagnosis #eds #ehlersdanlossyndrome #hypermobility #hsd #ceds #veds #heds # edsawareness #zebrastrong #zebrawarrior #chronicillness #spoonie #inspiration #mindbodyeds #agatewayofhope #charity #nonprofit #support #awareness #advocate #donate
🌟HAPPY NEW YEAR🌟 ⠀⠀ When it comes to New Year Resolutions with those living with a chronic illness, it can be a tricky time. Seeing those who are more able-bodied planning extremely ambitious new year goals can be exhausting and deflating • We
🌟HAPPY NEW YEAR🌟 ⠀⠀ When it comes to New Year Resolutions with those living with a chronic illness, it can be a tricky time. Seeing those who are more able-bodied planning extremely ambitious new year goals can be exhausting and deflating • We thought we’d make a few suggestions of some resolutions in the hopes of helping those of you with chronic illnesses feel like you too can partake and have a focus •⠀⠀ 1. Measure your health using your own standards of wellness 2. Rest when you need to without judgement 3. Push yourself only when it’s in your best interest to do so 4. View your lived experience of your chronic illness as expertise 5. Celebrate your successes, whether big or small 6. Practice asking what you need, it’s ok to ask for help 7. Learn to be more assertive with your physicians, you have every right for the best possible care 8. Being more open and honest about your struggles, there’s no need to apologise because you have every right to be visible • What are some of your resolutions for 2020? Comment below👇🏼 ⠀⠀ #ehlersdanlossyndrome #eds #edsawareness #ceds #veds #keds #hsd #hypermobility #hypermobilityspectrumdisorders #chronicillness #chronicdisease #chronicpain #chronicfatigue #backpain #backpainawareness #backpainweek #invisibleillness #invisibledisability #disability #butyoudontlooksick #zebrastrong #spoonie #spoonielife #charity #nonprofit #support #donate #mindbodyeds #agatewayofhope
The documentary movie ‘The Dark Horse’ is searching for EDS sufferers to have the chance to feature in the film! ⠀⠀ Fellow EDS sufferer and director @ashleighharleyofficial is holding an online virtual concert to take place on the 7th Jun Silence is compliance. We hear you. We stand with you. Black lives matter 🖤 🔴 #REDS4VEDS DAY 2020🔴 ⠀⠀ Today, we show our support by wearing red to help spread awareness of Vascular Ehlers-Danlos syndrome (vEDS). Get involved by doing the same and share it on social media to raise awareness of this rare and life-threatening 🚲 PRUDENTIAL RIDE LONDON 2020🚲 ⠀⠀ Mind Body EDS have been lucky enough to have been allocated 2 charity ballot places for this years Prudential Ride London race on 16th August 2020! ⠀⠀ If you’d like to take on a challenge whilst raising money MAY 2020🎗EHLERS-DANLOS SYNDROMES and HYPERMOBILITY SPECTRUM DISORDER AWARENESS MONTH🎗 ⠀⠀ On average, it takes over 10 years for a diagnosis of EDS or HSD. To help raise awareness this month, we want you to get involved by participating in our campa
🎗We’re inviting you, your family and friends to take part in The 2.6 Challenge from Sunday 26 April to help save the UK’s charities. The COVID-19 pandemic has caused a devastating effect on charities and we’re asking for your help!
Thank you @thelaughingstoma for this week’s #myedsdiagnosis feature story. Together, we can help make our invisible, visible. Spread the hope, the love, and the awareness #zebrawarrior #ehlersdanlossyndrome #chronicillness#myedsdiagnosis #eds # 💙R A N D O M A C T S O F K I N D N E S S D A Y💙 17th February 2020 • Several studies have shown that kindness is indeed contagious. When a person does an act of kindness for another person, it makes the person receiving it more likely to d 🌟MIND BODY EDS CHARITY QUIZ NIGHT🌟 • We’d like to say a BIG thank you to all those who came and supported @mindbodyeds Charity Quiz Night! An evening full of brain-boggling questions, laughter, delicious Sri Lankan Curry, and an incredib Thank you @uhmandi for this week’s #myedsdiagnosis feature story. Together, we can help make our invisible, visible. Spread the hope, the love, and the awareness #zebrawarrior #ehlersdanlossyndrome #chronicillness • • • • & 🎗T I N N I T U S A W A R E N E S S W E E K 🎗 • Tinnitus is the perception of noise or ringing in the ears. A common problem, tinnitus affects about 15 to 20 percent of people. Tinnitus isn't a condition itself — it's a symptom of an un Thank you @lauren.vasko for this weeks #myedsdiagnosis feature story. Together we can help make our invisible, visible. Spread the hope, the love, and the awareness #zebrawarrior #ehlersdanlossyndrome #chronicillness • • • • &bull 🌟 S I L E N T A U C T I O N 🌟 ⠀⠀ We have a wonderful selection of Silent Auction Prizes being offered for the Charity Quiz Night on Saturday 8th February. We are welcoming bids from the public! So show your support by place a bid! ⠀⠀ If you&rsquo “You don’t have to think about the full staircase, just take the first step” • Martin Luther King Jr • Dr King taught us about courage, equality, truth, justice, compassion, and humility. This national holiday serves as an Thank you @chronicallykim for this week’s #myedsdiagnosis feature story. Together, we can help make our invisible, visible. Spread the hope, the love, and the awareness #zebrawarrior #ehlersdanlossyndrome #chronicillness • • • & Thank you @adiepohlman for this week’s #myedsdiagnosis feature story. We appreciate you being able to share your story to help raise awareness about EDS. Together, united, we can help make our invisible, visible. Spread the hope, the love, and 📝EDS FACT📝 • Vascular Ehlers-Danlos syndrome is an inherited connective tissue disorder that is caused by defects in a protein called collagen. It is generally considered the most severe form of Ehlers-Danlos syndrome (EDS) • Common sympt Thank you @flyingthroughit for this week’s #myedsdiagnosis feature story. Your story is one we hear too often but together we'll raise awareness, achieve earlier diagnosis and support EDS patients manage symptoms. Spread the hope, the love, and 🌟HAPPY NEW YEAR🌟 ⠀⠀ When it comes to New Year Resolutions with those living with a chronic illness, it can be a tricky time. Seeing those who are more able-bodied planning extremely ambitious new year goals can be exhausting and deflating • We

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